Piriformis release surgery, anyone???
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scamp
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Joined: 01 Aug 2007
Posts: 259
Location: Kingston Ontario
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Posted: 10/22/09 - 16:36 Post subject:
Hi. I haven't been getting notices that people are posting but will respond when I have more time. I am on my way out to dinner. Tomorrow I am going to the fracture clinic and hopefully the fracture has healed and I can get rid of this boot. After walking around lots yesterday my pain has eschalated to about a 7 or 8. Wish I wasn't going out because sitting isn't fun when I am this sore.
Will get back to everyone later.
Shirley
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Tafoya
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Posted: 10/22/09 - 19:00 Post subject:
Scamp & Judy - Thank you. I have an apt with pain management on the 3rd - have to wait and see what they say
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judy
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Posted: 10/24/09 - 21:15 Post subject:
Thanks Nick for the name of the mediciation!!
Good luck in your pain center appointment Tafoya!
judy
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Tafoya
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Posted: 10/24/09 - 22:40 Post subject:
Thank you Judy but I feel like it is forever away
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menzie
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Posted: 10/25/09 - 13:23 Post subject:
Shirley, I hope your appointment went well and now you can be "bootless."
I hope your upcoming apppointment goes well for you Tofoya. Nick sorry you continue to suffer.
To everyone I hope you all have a good Sunday.
I too have not been receiving post updates. No changes on my D. We draw breath and that is good.
Jo, thanks for the note. I sent one back. Thanks, Menzie
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towerbr82
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Posted: 10/27/09 - 21:00 Post subject:
Hi everyone,
I am sorry I haven't checked in recently. My life has been very hectic and exhausting. I work 2-3 days a week standing up the whole time while poping Norco and pushing through the pain. None of my coworkers know the chronic pain I am in. I feel like I have to keep it a secret to secure my job. On top of that I am going to college part-time taking upper division science courses. And then my cat had to be put down a couple of weeks ago because of paralysis from a blood clot.
I wish I could help you guys out more but I am just so confused about my own pain that I don't know what to offer.
Shirley: I am sorry to hear about your fractured foot. I hope your recovery goes well. How did the accident happen?
I will check in and see how you guys are doing. I need to read up on some of the old posts.
Take care,
Brandon
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scamp
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Location: Kingston Ontario
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Posted: 10/27/09 - 22:25 Post subject:
Brandon, so good to hear from you. I am really sorry that you are still in so much pain. I can't imagine working standing on your feet and going to school. You are a very determined young man.
Judy, the medication that Dr. Filler mentioned for osteoporosis is miacalcin calcitonin. There is lots about it on the internet. Wish you would ask your doctor about it. I am curious.
Tafoya, Nov. 3rd is pretty close. Please keep us posted. I hope you can get some relief.
yes, Menzie, I am halfway bootless. I have healed but the doctor wants me to wear the boot when I go out for awhile and not wear it is the house. I have been reversing that and not wearing it outside and wearing it inside. We all keep hoping that something will come along for your D.
I still feel very aggravated in the surgery and today down the leg. My poor butt is probably confused that I am walking one way with the boot on and one way with it off. I had lots of spasming today.
My 7 year old grandson has the H1N1 flu but not too bad. He has had a fever but thank goodness it has not gone high. My daughter is keeping the whole family home so that it won't sread. So far he is the only one sick. I have been delivering groceries but can't go inside, just at the door.
nick, I thought you said that your pain med wasn't working but now you say it is working. Not sure how it is.
LSheppar , how is your husband doing?Hope this 2nd surgery is the answer to his pain.
Well, gotta go. It's getting late.
Shirley
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scamp
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Location: Kingston Ontario
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Posted: 10/27/09 - 22:46 Post subject: Re: 2 years!!
| HermanaAna wrote: | Hi everyone
I've been reading through some of the recent posts and it sounds like there are still a lot of challenges out there.
I have just past the two year mark since surgery and I am still so very glad that I had it done!!!!! With the surgery and the occasional RF treatment for SI pain, I am almost pain free. I am still dealing with the myofascial pain, but I think we have it under control for now. I know that life will never be the same as before I started dealing with pain, since "almost pain free" implies that every day I feel something, usually no more than level 1 or 2, and I do have to think about what I do. But, surgery really gave me my life back and I am eternally grateful that I had it done.
As I read some of your comments, I wonder why my surgery was such an immediate success and others of you have struggled so much post surgery and have even had to go back for a second surgery. I just want to encourage you to hang in there
Donna |
Donna, I think the reason you got such good relief is because you had classic piriformis syndrome, meaning the sciatic nerve was going right through the middle of both your piriformis muscles. I think there was neuroplasty on only one nerve. But relieving the pressure on the nerves from the p. muscles must have given you great relief since Dr. Filler knew exactly where the pressure was coming from. He must love that kind of surgery because he knows he will be able to fix it.
Am so glad you are posting some now. I really miss you. Things have been in a bit of turmoil in Honduras, haven't they?
Shirley
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filmfest
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Posted: 10/28/09 - 00:02 Post subject:
SCAMP - Something struck me as odd that a surgeon would be recommending an osteoporosis drug. Drug companies have a history of heavily marketing drugs using distorted or questioanble data. And doctors are so busy, they usually believe whatever the drug sales people tell them. Therefore, I use the unbiased drug analysis at the Public Citizen Health Research Group. www.worstpills.org
I looked up miacalcin calcitonin there. You have to be a subscriber (which I am) to access the in depth info. Here is what they say about that drug.
"calcitonin [calcitonin-salmon] (MIACALCIN)
We list this drug as a Do Not Use drug because, unlike other drugs for osteoporosis, there is no clear evidence that it can reduce the rate of new fractures."
In 2002, they wrote a newsletter article called "Calcitonin (CALCIMAR, MIACALIN) for Osteoporosis - Value Uncertain After 30 Years"
. Their conclusion was "after 30 years of clinical experience, there is no clear evidence that calcitonin reduces the risk of fracture. In the absence of such evidence, calcitonin should no longer be prescribed for the treatment of patients with osteoporosis. First, physicians in their everyday medical practice cannot differentiate between a useful drug and one that only leads to increased cost without added benefit to patients. This is the case with calcitonin. It continues to be prescribed, causing economic harm to patients, despite the fact that there is no clear evidence that the drug provides them a meaningful benefit in terms of fracture risk. "
I'll send you a copy of the article to your mailbox here. It's food for thought. Mary[/b]
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scamp
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Posted: 10/28/09 - 16:09 Post subject:
Thanks Mary. I looked up calcitonin also in medical websites that my brother in law who is a doctor recommended. I get the news letter every week from Medscape.
I should have said more about why Dr. Filler and I got inot talking about osteoporosis meds. I told him my fracture had not healed in 6 weeks and we talked about fractures related to osteoporosis. He asked me what I was taking for it. I told him I was osteopenic the last time I had my bone density test, but that my doctor was afraid that I may have osteoperosis and that is why I fractured so easily. She will be sending me for a bone density test. I told Dr. F. that my sister did not tolerate fosamax and that is when he mentioned the calcitonin.
From what I have read about calcitonin, it is still suggested in most articles dated 2008 and 2009 as a treatment for osteoporosis. It is also mentioned as a possible treatment by the most recent recommendations of the National Osteoporosis Foundation in 2009. It is prescribed when a person does not tolerate fosamax or estrogen. One study said that it reduced fractures by 33%. Also the studies say that calcitonin may ease the pain of spine fractures. Estrogen is still highly recommended, mostly in the transdermal form and bioidentical form. Since women have gone off of estrogen as a result of the studies suggesting stroke and breast cancer., there has been a hugh increase of bone fractures in women. Dr. filler did not know that I am taking HRT with a patch for estrogen and prometrium (progestoron). Frankly, I appreciated that he took an interest in my bone health since the fracture has totally aggravated the surgery site. Those studies against estrogen were done on premarin which is not bioidentical and not delivered transdermally.
Sorry this is so long but I wanted to make sure that I said more about calcitonin for Mary and Judy. It has also come out as a nasal spray.
The most recent research about calcitonin is about treatment for osteoarthritis. I will be looking into that more.
Shirley
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patchatu
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Posted: 10/30/09 - 09:41 Post subject:
Hi ,I'm new for this site ,sorry to hear aboout all your pain and I hope you get well soon
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scamp
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Location: Kingston Ontario
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Posted: 10/30/09 - 12:11 Post subject:
Patchatu if you are on this forum to get some support or to give some suport re: piriformis syndrome then welcome. If you are on here to entice us into some websites to sell us something then please don't post on this forum.
Tjhanks.
Shirley
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canalligator
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Posted: 11/01/09 - 03:33 Post subject: piriformis surgery
after five years of suffering with this pain syndrome and after trying physical therapy 2X, stretching massaging, muscle relaxers, and every kind of pain pill imaginable, i am scheduled for surgery with neurosurgeon dr, aaron filler on thursday, november 5th, 2009. i've met with him 4 times now in order for him to get a complete diagnosis through various ways. mine surgery will be on both sides and will take 2 1/2 hours per side. from all i've read and heard, his method is by far the most reputable, boasting of a very high success rate. i can't tell you how excited i am that this painful condition may never bother me again. (cross my fingers, knock on wood))
i was also fortunate that he practices in my own city, los angeles. many, however, come to him from all over the world for surgical relief. if anyone shares this condition and is looking for possible fixes, i'll be happy to update here. if i can help somebody on their search of how to end this sciatic nightmare, it will be well worth my reporting. plus, i'm a little scared, never had surgery and i'd like to feel less alone in this venture.
if you have any questions or curiosities, feel free to ask
canalligator
http://www.youtube.com/watch?v=DuxclPpwTLQ
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canalligator
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Posted: 11/01/09 - 03:44 Post subject:
hi everyone!
after five years of suffering with this pain syndrome and after trying physical therapy 2X, stretching massaging, muscle relaxers, and every kind of pain pill imaginable, i am scheduled for surgery with neurosurgeon dr, aaron filler on thursday, november 5th, 2009. i've met with him 4 times now in order for him to get a complete diagnosis through various ways. mine surgery will be on both sides and will take 2 1/2 hours per side. from all i've read and heard, his method is by far the most reputable, boasting of a very high success rate. i can't tell you how excited i am that this painful condition may never bother me again. (cross my fingers, knock on wood))
i was also fortunate that he practices in my own city, los angeles. many, however, come to him from all over the world for surgical relief. if anyone shares this condition and is looking for possible fixes, i'll be happy to update here. if i can help somebody on their search of how to end this sciatic nightmare, it will be well worth my reporting. plus, i'm a little scared, never had surgery and i'd like to feel less alone in this venture.
if you have any questions or curiosities, feel free to ask
canalligator
http://www.youtube.com/watch?v=DuxclPpwTLQ
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menzie
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Posted: 11/01/09 - 12:51 Post subject:
Canalligator, good luck on your surgery on the 5th. My Daughter is a past patient of Filler as are many people on this site. Hope everything works out for you. The time for your surgery will probably be longer, as my D's surgery was only one side and it took 4 1/2 hours maybe even 5 1/2. Her surgery was March 24, 2008. I will think of you on Thursday.
Menzie
Jo, Do you have a new email?
Shirley, hope all is going well and hope your Grand children recovered from the flu. My youngest D has it as well. YUCK.
Tafoya, hope your pain management appt goes well for you this week.
Brandon, great to hear from you. You are a tough dude, hang in there.
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